Darzalex® Infosheet

This Infosheet is written for patients and explains:

  • What Darzalex (daratumumab) is and how it works
  • How it is used in the treatment of myeloma
  • The possible side-effects associated with it
  • What evidence exists to support its use

Travelling and Travel

This Infosheet is written for patients. It aims to:

  • Help AL amyloidosis patients think about what they need to do before travelling abroad
  • Provide information about travel insurance for patients

 

 

The SAP Scan

This Infosheet is written for patients. It aims to:

  • Explain what a SAP scan is and how it works
  • Provide information on why it is important for AL amyloidosis patients

Inherited myeloma Infosheet

This Infosheet is written for patients and explains:

  • Whether myeloma is considered to be an inherited cancer
  • What research is being done to understand the genetic inheritance of myeloma

 

Clinical trials Infoguide

This Infoguide is written for patients and their families. It aims to explain:

  • What clinical trials are
  • Why they are important
  • The different types and phases of clinical trials
  • What patients need to consider before deciding to take part in one

Myeloma Your Essential Guide

This Essential Guide is written for patients. It aims to:

  • Provide information about myeloma and its treatment and management
  • Helps patients make informed decisions about their treatment and care
  • Provide information for carers and family members

Serum Free Light Chain Assay

This Infoguide is written for patients. It aims to:

  • Provide information about the serum free light chain (SFLC) assay
  • Describe how the SFLC assay may be used in the diagnosis and monitoring of Al amyloidosis
  • Help patients make informed decisions about their treatment and care

Revlimid®

This Infoguide is written for AL amyloidosis patients. It aims to:

  • Provide information about Revlimid as a treatment for AL amyloidosis
  • Explain the possible side-effects associated with it
  • Helps patients make informed decisions about their treatment options

Peripheral Neuropathy

This Infosheet is written for AL amyloidosis patients. It aims to explain:

  • What peripheral neuropathy is and why it can happen in AL amyloidosis
  • What the associated symptoms are
  • How it is treated and managed
  • What patients can do to self-manage