Myeloma UK provides information for AL amyloidosis patients in a variety of formats. This section enables you to download printed information about AL amyloidosis, its treatment and management. Information is also available for patients on a range of specific topics relating to living with AL amyloidosis, such as diet and nutrition, travel insurance and setting up a support group.
To order hard copies of our publications visit www.myeloma.org.uk. Order now.

Haematologists

An Introduction

This leaflet is written for AL amyloidosis patients. It aims to:

  • Provide a brief overview of AL amyloidosis and its treatment
  • Answer some of the more common questions about AL amyloidosis
  • Help patients make informed decisions about their treatment
Download

Constipation

This Infosheet is written for AL amyloidosis patients and explains:

  • What constipation is
  • What causes it
  • How it is treated and managed
  • What can be done to prevent it
Download

Diarrhoea

This Infosheet is written for AL amyloidosis patients. It aims to explain:

  • What diarrhoea is
  • What causes it
  • How it is treated and managed
  • What can be done to prevent it
Download

Diet and nutrition

This Infoguide is written for AL amyloidosis patients and explains:

  • What a well balanced diet is
  • Why it can be difficult to maintain
  • When a special diet may be necessary
  • What can be done to maintain a healthy diet
Download

Essential Guide

This Essential Guide is written for patients. It aims to:

  • Provide information about AL amyloidosis, its treatment and management
  • Helps patients make informed decisions about their treatment and care
  • Provide information for carers and family members
Download

Fatigue

This Infosheet is written for patients and their families. It aims to:

  • Help them understand the causes of AL amyloidosis-related fatigue
  • Provide them with information about the different ways of fatigue can be treated and managed
  • Help them cope with the effects of fatigue and provide some tips for self-management
Download

Finances

This Infosheet is written for patients and explains the various benefits and allowances that may be available to Al amyloidosis patients and their carers.

Download

Living with AL amyloidosis – Your Essential Guide

This Infoguide is written for patients. It aims to provide:

  • A better understanding of AL amyloidosis and the impact it may have
  • Ways to manage some of the challenges brought about by a diagnosis of AL amyloidosis
  • Tips on how to cope with the symptoms and complications of AL amyloidosis and side-effects of treatment
Download

Melphalan and Dexamethasone (Mel-Dex)

This Infoguide is written for AL amyloidosis patients. It aims to:

  • Provide information about Melphalan and dexamethasone as a treatment combination for AL amyloidosis
  • Explain the possible side-effects associated with these drugs
  • Helps patients make informed decisions about their treatment options
Download

Mouth care

This Infosheet is written for patients and explains:

  • The causes of oral complications in Al amyloidosis
  • What patients should look out for
  • What treatments are available
  • How they can self-manage
Download

Peripheral Neuropathy

This Infosheet is written for AL amyloidosis patients. It aims to explain:

  • What peripheral neuropathy is and why it can happen in AL amyloidosis
  • What the associated symptoms are
  • How it is treated and managed
  • What patients can do to self-manage
Download

Revlimid®

This Infoguide is written for AL amyloidosis patients. It aims to:

  • Provide information about Revlimid as a treatment for AL amyloidosis
  • Explain the possible side-effects associated with it
  • Helps patients make informed decisions about their treatment options
Download

Serum Free Light Chain Assay

This Infoguide is written for patients. It aims to:

  • Provide information about the serum free light chain (SFLC) assay
  • Describe how the SFLC assay may be used in the diagnosis and monitoring of Al amyloidosis
  • Help patients make informed decisions about their treatment and care
Download

Steroids Infosheet

This Infosheet is written for Al amyloidosis patients. It aims to:

  • Provide information about steroids and why they are used in the treatment of AL amyloidosis
  • Explain the possible side-effects associated with them
  • Help patients make informed decisions about their treatment options
Download

The SAP Scan

This Infosheet is written for patients. It aims to:

  • Explain what a SAP scan is and how it works
  • Provide information on why it is important for AL amyloidosis patients
Download

Travelling and Travel

This Infosheet is written for patients. It aims to:

  • Help AL amyloidosis patients think about what they need to do before travelling abroad
  • Provide information about travel insurance for patients

 

 

Download

Velcade®

This Infoguide is written for patients. It aims to:

  • Provide information about Velcade as a treatment for AL amyloidosis
  • Explain the possible side-effects associated with it
  • Helps patients make informed decisions about their treatment options
Download

Nurses

An Introduction

This leaflet is written for AL amyloidosis patients. It aims to:

  • Provide a brief overview of AL amyloidosis and its treatment
  • Answer some of the more common questions about AL amyloidosis
  • Help patients make informed decisions about their treatment
Download

Constipation

This Infosheet is written for AL amyloidosis patients and explains:

  • What constipation is
  • What causes it
  • How it is treated and managed
  • What can be done to prevent it
Download

Diarrhoea

This Infosheet is written for AL amyloidosis patients. It aims to explain:

  • What diarrhoea is
  • What causes it
  • How it is treated and managed
  • What can be done to prevent it
Download

Diet and nutrition

This Infoguide is written for AL amyloidosis patients and explains:

  • What a well balanced diet is
  • Why it can be difficult to maintain
  • When a special diet may be necessary
  • What can be done to maintain a healthy diet
Download

Essential Guide

This Essential Guide is written for patients. It aims to:

  • Provide information about AL amyloidosis, its treatment and management
  • Helps patients make informed decisions about their treatment and care
  • Provide information for carers and family members
Download

Fatigue

This Infosheet is written for patients and their families. It aims to:

  • Help them understand the causes of AL amyloidosis-related fatigue
  • Provide them with information about the different ways of fatigue can be treated and managed
  • Help them cope with the effects of fatigue and provide some tips for self-management
Download

Finances

This Infosheet is written for patients and explains the various benefits and allowances that may be available to Al amyloidosis patients and their carers.

Download

Living with AL amyloidosis – Your Essential Guide

This Infoguide is written for patients. It aims to provide:

  • A better understanding of AL amyloidosis and the impact it may have
  • Ways to manage some of the challenges brought about by a diagnosis of AL amyloidosis
  • Tips on how to cope with the symptoms and complications of AL amyloidosis and side-effects of treatment
Download

Melphalan and Dexamethasone (Mel-Dex)

This Infoguide is written for AL amyloidosis patients. It aims to:

  • Provide information about Melphalan and dexamethasone as a treatment combination for AL amyloidosis
  • Explain the possible side-effects associated with these drugs
  • Helps patients make informed decisions about their treatment options
Download

Mouth care

This Infosheet is written for patients and explains:

  • The causes of oral complications in Al amyloidosis
  • What patients should look out for
  • What treatments are available
  • How they can self-manage
Download

Peripheral Neuropathy

This Infosheet is written for AL amyloidosis patients. It aims to explain:

  • What peripheral neuropathy is and why it can happen in AL amyloidosis
  • What the associated symptoms are
  • How it is treated and managed
  • What patients can do to self-manage
Download

Revlimid®

This Infoguide is written for AL amyloidosis patients. It aims to:

  • Provide information about Revlimid as a treatment for AL amyloidosis
  • Explain the possible side-effects associated with it
  • Helps patients make informed decisions about their treatment options
Download

Serum Free Light Chain Assay

This Infoguide is written for patients. It aims to:

  • Provide information about the serum free light chain (SFLC) assay
  • Describe how the SFLC assay may be used in the diagnosis and monitoring of Al amyloidosis
  • Help patients make informed decisions about their treatment and care
Download

Steroids Infosheet

This Infosheet is written for Al amyloidosis patients. It aims to:

  • Provide information about steroids and why they are used in the treatment of AL amyloidosis
  • Explain the possible side-effects associated with them
  • Help patients make informed decisions about their treatment options
Download

The SAP Scan

This Infosheet is written for patients. It aims to:

  • Explain what a SAP scan is and how it works
  • Provide information on why it is important for AL amyloidosis patients
Download

Travelling and Travel

This Infosheet is written for patients. It aims to:

  • Help AL amyloidosis patients think about what they need to do before travelling abroad
  • Provide information about travel insurance for patients

 

 

Download

Velcade®

This Infoguide is written for patients. It aims to:

  • Provide information about Velcade as a treatment for AL amyloidosis
  • Explain the possible side-effects associated with it
  • Helps patients make informed decisions about their treatment options
Download

GPs

An Introduction

This leaflet is written for AL amyloidosis patients. It aims to:

  • Provide a brief overview of AL amyloidosis and its treatment
  • Answer some of the more common questions about AL amyloidosis
  • Help patients make informed decisions about their treatment
Download

Constipation

This Infosheet is written for AL amyloidosis patients and explains:

  • What constipation is
  • What causes it
  • How it is treated and managed
  • What can be done to prevent it
Download

Diarrhoea

This Infosheet is written for AL amyloidosis patients. It aims to explain:

  • What diarrhoea is
  • What causes it
  • How it is treated and managed
  • What can be done to prevent it
Download

Diet and nutrition

This Infoguide is written for AL amyloidosis patients and explains:

  • What a well balanced diet is
  • Why it can be difficult to maintain
  • When a special diet may be necessary
  • What can be done to maintain a healthy diet
Download

Essential Guide

This Essential Guide is written for patients. It aims to:

  • Provide information about AL amyloidosis, its treatment and management
  • Helps patients make informed decisions about their treatment and care
  • Provide information for carers and family members
Download

Fatigue

This Infosheet is written for patients and their families. It aims to:

  • Help them understand the causes of AL amyloidosis-related fatigue
  • Provide them with information about the different ways of fatigue can be treated and managed
  • Help them cope with the effects of fatigue and provide some tips for self-management
Download

Finances

This Infosheet is written for patients and explains the various benefits and allowances that may be available to Al amyloidosis patients and their carers.

Download

Living with AL amyloidosis – Your Essential Guide

This Infoguide is written for patients. It aims to provide:

  • A better understanding of AL amyloidosis and the impact it may have
  • Ways to manage some of the challenges brought about by a diagnosis of AL amyloidosis
  • Tips on how to cope with the symptoms and complications of AL amyloidosis and side-effects of treatment
Download

Melphalan and Dexamethasone (Mel-Dex)

This Infoguide is written for AL amyloidosis patients. It aims to:

  • Provide information about Melphalan and dexamethasone as a treatment combination for AL amyloidosis
  • Explain the possible side-effects associated with these drugs
  • Helps patients make informed decisions about their treatment options
Download

Mouth care

This Infosheet is written for patients and explains:

  • The causes of oral complications in Al amyloidosis
  • What patients should look out for
  • What treatments are available
  • How they can self-manage
Download

Peripheral Neuropathy

This Infosheet is written for AL amyloidosis patients. It aims to explain:

  • What peripheral neuropathy is and why it can happen in AL amyloidosis
  • What the associated symptoms are
  • How it is treated and managed
  • What patients can do to self-manage
Download

Revlimid®

This Infoguide is written for AL amyloidosis patients. It aims to:

  • Provide information about Revlimid as a treatment for AL amyloidosis
  • Explain the possible side-effects associated with it
  • Helps patients make informed decisions about their treatment options
Download

Serum Free Light Chain Assay

This Infoguide is written for patients. It aims to:

  • Provide information about the serum free light chain (SFLC) assay
  • Describe how the SFLC assay may be used in the diagnosis and monitoring of Al amyloidosis
  • Help patients make informed decisions about their treatment and care
Download

Steroids Infosheet

This Infosheet is written for Al amyloidosis patients. It aims to:

  • Provide information about steroids and why they are used in the treatment of AL amyloidosis
  • Explain the possible side-effects associated with them
  • Help patients make informed decisions about their treatment options
Download

The SAP Scan

This Infosheet is written for patients. It aims to:

  • Explain what a SAP scan is and how it works
  • Provide information on why it is important for AL amyloidosis patients
Download

Travelling and Travel

This Infosheet is written for patients. It aims to:

  • Help AL amyloidosis patients think about what they need to do before travelling abroad
  • Provide information about travel insurance for patients

 

 

Download

Velcade®

This Infoguide is written for patients. It aims to:

  • Provide information about Velcade as a treatment for AL amyloidosis
  • Explain the possible side-effects associated with it
  • Helps patients make informed decisions about their treatment options
Download