We are pleased to report that University College London Hospital, Leicester Royal Infirmary, Basingstoke and North Hampshire Hospital, Dorset County Hospital and Salisbury District Hospital have all received Myeloma UK’s CSEP award. Each hospital has demonstrated excellent clinical practice, with some notable highlights.
Our Clinical Practice Services Team continued their focus on raising awareness of myeloma in primary care. This included launching a guide for GPs and highlighting the importance of early diagnosis at national conferences.
The Patient Advocacy team are researching how delays in diagnosing myeloma affect patients’ quality of life. The research will inform a policy report to make NHS and Government decision makers aware of the link between delayed diagnosis and quality of life.
Myeloma UK funded a research project to find out if an app, The ChoiceApp©, could help UK patients with their treatment decisions. As part of the project, the app was shared with small groups of myeloma patients and haematologists to assess whether this approach could benefit UK myeloma patients.
The University of Oxford is looking for MGUS (monoclonal gammopathy of undetermined significance), smouldering myeloma and Waldenstrom’s macroglobulinemia patients to join the OxPLoreD study.