Myeloma UK presented a poster at the 62nd Annual Scientific Meeting of the British Society for Haematology 2022.
The poster summarised data collected from patient surveys as part of the Clinical Service Excellence Programme (CSEP) accreditation process. Read more to learn what patients would change if they could change one thing about their myeloma treatment and care.
In this Policy Review, the Bone Working Group of the International Myeloma Working Group updates its clinical practice recommendations for the management of multiple myeloma-related bone disease.
We are pleased to report that University College London Hospital, Leicester Royal Infirmary, Basingstoke and North Hampshire Hospital, Dorset County Hospital and Salisbury District Hospital have all received Myeloma UK’s CSEP award. Each hospital has demonstrated excellent clinical practice, with some notable highlights.
Our Clinical Practice Services Team continued their focus on raising awareness of myeloma in primary care. This included launching a guide for GPs and highlighting the importance of early diagnosis at national conferences.
The Patient Advocacy team are researching how delays in diagnosing myeloma affect patients’ quality of life. The research will inform a policy report to make NHS and Government decision makers aware of the link between delayed diagnosis and quality of life.
Myeloma UK funded a research project to find out if an app, The ChoiceApp©, could help UK patients with their treatment decisions. As part of the project, the app was shared with small groups of myeloma patients and haematologists to assess whether this approach could benefit UK myeloma patients.
