New research has uncovered a concerning gap in the time taken to diagnose myeloma between ethnic groups, with black people experiencing longer waits for a diagnosis than white people. The study showed that black patients diagnosed with myeloma had a median wait time of over one month longer than white people.
DetailsWe are pleased to report that Royal Hampshire County Hospital, Ipswich Hospital, Belfast City Hospital, The Christie Hospital, HCA UK at University College Hospital, Southmead Hospital, Colchester Hospital and Freeman Hospital have all received Myeloma UK’s Clinical Service Excellence Programme (CSEP) award. Each hospital demonstrated excellent clinical practice with notable highlights.
DetailsTo inform a NICE appraisal Myeloma UK worked with Blood Cancer UK, Leukaemia Care and Anthony Nolan to survey myeloma and other blood cancer patients about their experiences of COVID-19 and COVID-19 treatment.
DetailsIn February 2022 Myeloma UK launched a new Peer Buddy service to connect and empower myeloma patients and their loved ones.
Feedback from service users demonstrates the significant improvement support from someone with experience of the same condition has on wellbeing.
From March until May 2022 Myeloma UK ran a campaign highlighting the importance of a timely myeloma diagnosis.
Read about the report on the impact of delayed diagnosis and the diagnosis-focused research programme launched during the campaign.
Myeloma UK presented a poster at the 62nd Annual Scientific Meeting of the British Society for Haematology 2022.
The poster summarised data collected from patient surveys as part of the Clinical Service Excellence Programme (CSEP) accreditation process. Read more to learn what patients would change if they could change one thing about their myeloma treatment and care.
We are pleased to report that University College London Hospital, Leicester Royal Infirmary, Basingstoke and North Hampshire Hospital, Dorset County Hospital and Salisbury District Hospital have all received Myeloma UK’s CSEP award. Each hospital has demonstrated excellent clinical practice, with some notable highlights.
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