Please click the image to view the tool. Early diagnosis of myeloma relies on primary care clinicians being able to accurately suspect, test and refer patients with suspected myeloma. It is important that GPs are able to distinguish those patients that require urgent investigation in secondary care versus those that likely have lower risk MGUS and so can…
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The year so far has been particularly busy for the myeloma access pipeline with four new myeloma treatments being appraised by both drug approval bodies, the National Institute for Healthcare Excellence (NICE) and the Scottish Medicines Consortium (SMC). There is also a new treatment for patients with AL Amyloidosis which has begun the appraisal process…
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Myeloma UK have developed a series of Digital Infoday Sessions to continue providing information and support to patients following the cancellation of our usual Infoday events programme. The online events take place in a variety of formats, each lasting one hour. This includes panel discussions, Q & A sessions and presentations each centred around a…
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Myeloma UK are passionate about ensuring patients have access to the treatments that are right for them. As a result, one of the aims of a recent project in our Health Services Research Programme was to understand how myeloma patients choose between different treatment options and identify what treatment attributes are most important to them.…
DetailsThese updated guidelines, produced by the British Committee for Standards in Haematology (BCSH) and the UK Myeloma Forum, summarise a national consensus of the haematological community involved in the diagnosis and management of myeloma patients. They should be read in conjunction with the BCSH Guidelines on the supportive care of myeloma patients. Bird et al.…
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Following the cancellation of the British Society for Haematology 60th Annual Scientific Meeting, due to take place this week, the British Journal of Haematology have released all accepted abstracts as a supplement to the most recent issue. You can access the abstract list here. Our two abstracts, which outline our Clinical Service Excellence Programme and…
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All myeloma patients have been advised to shield for 12 weeks to protect themselves from COVID-19. At Myeloma UK, we recognise this may cause psychological and emotional stress for many patients and their families and those with related conditions. Our Myeloma Infoline (0800 980 3332, UK or 1800 937 773, Ireland) and Ask the Nurse…
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During the COVID-19 pandemic, healthcare professionals looking after myeloma patients face important and difficult decisions about the best way to treat their patients, whilst minimising their risk of infection. Several myeloma specialists have been sharing their experience as they work together to consider the safest and most effective ways to manage this vulnerable group of patients. Here we have compiled a short list of informative webinars, podcasts and articles to keep…
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Myeloma UK have developed an information hub to help keep patients up to date with the latest news on COVID-19. The COVID-19 Information Hub is a one stop shop for information about the COVID-19 pandemic and how it is affecting patients’ treatment and care. The Hub is being regularly updated with the latest news and guidance from the UK Government…
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